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Little Ayah: Kim Kardashian joins in fundraising for baby who needs world’s most expensive medicine

40-year-old reality show star well known for her burgeoning law career and prison reform activism Kim Kardashian has sparked real change in the lives many, recently Little Ayah Lundt was among the many.

The American billionaire recently joined many in the world in donating to raise KSh 270 million for an expensive drug to save Little Ayah’s life.

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The 14-month-old baby was diagnosed with spinal muscular atrophy.

Taking to social media, Kardashian shared a screen grab of Aya’s go fundme page and captioned,

This is Ayah (born on January 15, 2020), a bubbly little princess who likes to smile a lot. Ayah has a rare genetic and degenerative disorder called SMA (Spinal Muscular Atrophy) type 2.

SMA is a rare genetic disease that affects the central nervous system, voluntary skeletal muscle movement, and the peripheral nervous system (the connection between the central nervous system and the rest of the body). As a result, SMA affects basic motor functions such as walking, hand movements and feeding. After progression, the patients lose the ability to swallow, breathe and eventually die.

SMA affects one in 10,000 live births and cannot be cured. However, today patients are given treatment options to prevent further progression, as any damage caused by the disease is irreversible. Read part of Kim’s post

Ayah has managed to raise KSh 149 million out of KSh 270 million target.

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Ayah’s parents, Frank Lundt and Mary Mithika live in Denmark.

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